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by Chamie Delkeskamp
This essay is, in some respects, a
Lenten “teshuva.” I was inspired by my husband who wrote a
personal Advent “teshuva” as a way to prepare for Christ’s birth.
In Judaism, “teshuva” is a means of confessing our sin and returning to
God. As I reflect on my relationship with “all God’s
children,” I must confess that I all too often have missed the
mark. In regards to people with disabilities, I must confess that
I have let myself succumb to embarrassment, saddened confusion, or
frustration.
I imagine that most of us, if not
all of us, have experienced a red-faced moment when our children have
commented upon a person in our midst. One such person frequents
the coffee shop by our house. I remember the first time we saw
him. Jude stared. Then, in typical preschool fashion, Jude
asked (in what seemed to me at the time an extremely loud voice), “Hey,
Mom, why is that man so little? See him, Mom?” Jude pointed
to make sure I noticed. I longed to hide my face along with the
intrigued gaze of my son. Without looking in the direction of
Jude’s pointing finger, I tried to change the subject. Couldn’t we have this conversation later? However, Jude, The Observant, does not wait to ask questions, “How did he get here? Can elves drive cars?” Oh, dear God, he said the word “elf.”
My face felt flush in discomfort. I chose to look only at the
coffee menu and nonchalantly say to Jude, “I don’t know, honey.
Now, did you want a hot cocoa?”
If embarrassment doesn’t get me, saddened confusion may come into
play. Several years ago, we were Christmas caroling with people
from our church. We sang at the homes of many homebound members
of the congregation. Our last stop was a group home for people
with cerebral palsy. To see the apparent joy and Christmas spirit
the caroling brought to the residents was something for which I was
grateful. But the whole way back to the church, I wrestled inside
of myself. In the last weeks, there had been conversation about
the church doing more frequent ministry with this group home.
Could I? Did I want to? I felt guilty for the parts of me
that didn’t want to go back. It wasn’t the people
themselves. The problem was that the experience opened up a hole
inside of me. I was sad, angry, confused. Why, God?!?!?
That was my overriding sentiment. Seeing people so crippled opens
up a whole host of theological questions. It can make us wonder
if God is, indeed, “All-Powerful” and if so, then why do these people
have something “incurable”?
If embarrassment and saddened confusion doesn’t get me, frustration may
come into play. In the nineties, I worked at a Bible camp which
hosts thousands of children each summer from various churches.
The camp strives to serve all, but it is not a camp that is specially
equipped or trained to deal with children who have mental or physical
disabilities. Nonetheless, the camp staff was informed that we
would be receiving a camper for a week who needed special care and
extra attention. We were told that unlike the soft, gentle
demeanor of most children with Down’s Syndrome, “Kate” had a strong
temper and cussed frequently (a trait, we heard, that she had learned
from her brother). She also liked to wander.
Staff were assigned “Kate-Time”
where we would keep specific watch over her; this was in addition to
our “regular hours.” As she was roaming along one day, me near
her side, a mosquito bit her in the leg. Kate slapped the bug
while shouting, “Shit!” She then looked me, her head tilted, a
question in her eyes. “Shit? Shoot? Shit?
Shoot?”
“We say ‘shoot,’ Kate,” I replied.
“Shoot!” she shouted as she beamed, proud of her accomplishment of
using the “appropriate language.” Then with the joy and pleasure
of learning oozing out of her, Kate exclaimed, “And no more ‘f-you!’”
Though Kate had brought me smiles from her pure innocence, the extra
work made the week more tiring and challenging. In my tiredness,
I felt frustration. My frustration turned to guilt when I heard
the news that Kate could not be found. Our constant little
wanderer had finally made her way past our heightened
supervision. As darkness took over camp, people
searched. One staff member finally heard the sound of crying near
the lakeshore. Her heart beating with fear that Kate may have
been hurt, she followed the sound. Kate was safe with neither a
scratch nor a bump. She was, however, curled up in the fetal
position at the foot of the large cross that rose out of the
sand. In tears, Kate kept repeating, “Jesus died for me.
Jesus loves me. Jesus died for me. Jesus loves me…”
Kate grasped what many people never grasp their whole lives… the great and wide and mysterious love of God.
During this season in which Jesus takes the sins of the world upon the
cross, I confess my sins of hiding in embarrassment and shame, of
letting tough questions cast out action, and of rolling my eyes at the
time, frustration, and challenge.
May we hear words of forgiveness. As we “turn around,” may we
hear the call to care for “the least of these.” In Matthew 25,
Jesus says that when we care for the hungry, the thirsty, the naked -
“the least of these” - then we are caring for Him. I believe that
this also means that when we engage in warm and honest conversation
with "little people" (or midgets... the debate seems to continue as
at the appropriate definition), sing at a group home for people with
cerebral palsy, or follow a wandering Down’s Syndrome children through
the woods, we are following in the footsteps of Jesus.
In an attempt to help our children and ourselves grow in understanding
and grace, we were grateful to include on our sabbatical journey a
night’s stay at Special K Ranch in Columbus, Montana. The ran ch
was one of the many stops of our cross-country road trip where we were
exploring “family spirituality.” We met several of the residents
who are 18 years or older but have mental retardation. The ranch
has six homes and in each home, there is a married or single person,
some with children, who live in the home as well as provide care for
approximately six people who have special needs. During the day,
these special needs residents work on the ranch, including growing
tomatoes and flowers in the 40,000 square foot greenhouse.
The residents were proud of their work and eager to give us a tour and
show us how they grew and picked tomatoes. It was a place of
dignity and respect. I was inspired by the families who took more
"children" into their homes.
Hearing and experiencing the story
of Special K Ranch opened us up in new ways. Maybe that is one of
the keys. Whether we find ourselves more removed from a daily
life of living with a person or persons with special needs or we find
ourselves immersed in it fully, I would argue that we need to share our
stories with one another, be honest with one another, and work together
in creating that peacable kingdom where all of God's children feel
dignified, respected, and most of all, loved.
All God’s Children Mulling Questions
1. What feelings, thoughts,
and/or confessions to you bring when considering people with
disabilities? Have you had times of embarrassment, anger,
sadness, or frustration?
2. What blessings and joys have you received from people with disabilities? What lessons have they taught you?
3. Do you have someone in your
family who has special needs? What would you like people to know
about you and your family? How would you like the church to
respond? What are your prayers, hopes, and dreams?
4. Read Matthew
25:31-46. How might people with disabilities fit into this
passage? You may want to read this in the ancient practice of
“lectio divina” (or “divine reading”). First, read the scripture
more than once slowly, deliberately. Then meditate on the
words. Next, pray over all that comes up inside of you; have a
conversation with God. Finally, rest in God’s presence, picking,
perhaps, a word or phrase that you hold with you.
5. Who inspires you in loving and serving people with disabilities?
All God’s Children Action Opportunities
1. Learn or volunteer with a respite program that provides families a break from caring for their special needs children.
2. Provide a learning opportunity
for families to hear from someone who trains dogs to help those in
need. A book that we love at our house is The View from Under the Pew
by Diane Winters Johnson. Pastor Diane, who is legally blind,
tells the story of how her dog accompanies and helps her each day of
her pastoring. The book is illustrated and geared for young
children.
3. Visit a group home and sing, tell
stories, or play games with residents. You might also consider
also making and delivering Easter baskets.
4. Sponsor a “disability awareness” event in your group or at your church or faith community.
All God’s Children For Further Insight
If you would like to read books to
your children to help them grow in understanding and awareness, the
organization Nathaniel’s Hope provides a reading list at Nathaniel's Hope.
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